Who gets a say in how a donated sample is used?
A donated sample can contribute to research long after it leaves the donor. UK Biobank’s consent and withdrawal arrangements show how a participant’s choices, the institution’s access decisions, and research already completed can fit together.
Questions you could explore
- How does withdrawing from future research differ from undoing an analysis already completed?
Start reading
- UK BiobankOur agreement with you
UK Biobank describes the commitments made to participants and three different levels of withdrawal. These are one institution’s arrangements, not a rule for every biobank.
- UK BiobankOriginal participant further information leaflet
The original participant leaflet explains access approvals and why withdrawal cannot remove data from analyses already done. It is linked from the current privacy notice.
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